With M.E. any periods of not-complete-awfulness are spent trying to catch up with the world (job, friends, driving, etc).
Even when I'm starting to see improvement (finally), and believing there is hope (finally), it is so easy for it to be ripped away again. I spent most of last week lying down or asleep; not watching anything, not listening to anything, only getting up to go to the toilet and get food (and I know I am lucky every time I am able to stand up) - in general I just existed day after day, waiting for life to be able to try and catch up with the online world (as I have already fallen so deep I no longer know if I can ever catch up with the real world).
Obviously I'm lucky that not every day is this bad any more, but M.E. means that for the rest of my life any semblance of life I've built could (and probably will) come crashing down around me at some point, and once again I'll fall behind.
3 comments:
We all fall behind, and we will never completely catch up with the rest of the world with our snail pace, I hope you feel much better soon. Lots of hugs
Hello! I'm new to your blog and am looking forward to reading more. I also have ME and actually feel that this post is brilliant for raising awareness of what it is like to suffer from it. It is just so difficult to get all of the things you would like to done. I am all too familiar with that 'falling behind' feeling! I hope your today has been as good as it possibly could be.
Faye (freckles-and-all.blogspot.co.uk)
Thank you both so much for your comments.
Hayley-Eszti - While that may be the case, I think I will always have that feeling in the back of my mind. In the same way I struggle to get rid of physical things, I have the need to catch up with everything.
Faye - Thank you for stopping by, and I'm glad you found this post useful.
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