One of the worst things about living with M.E. isn’t the pain and exhaustion I get from doing anything (physically/mentally/emotional), but the fact that these symptoms don’t always come straight away. This is something that is the hardest to explain to others.
The problem with this is that I can end up doing even more when I think I haven’t been too badly affected by living my life, and so it can build up until suddenly I am bedbound and screaming in pain. Yes, this is an extreme example but it has happened to me in the past.
On Tuesday I was able to go to the cinema with my sister – this is one of the things I miss, and so a very big deal for me – but the really awful symptoms didn’t hit until Thursday, causing my sister to say ‘but you didn’t do anything yesterday’ which was sort of true, though I had spent longer on the laptop than I knew I should have. I do seem to be getting better at resisting the urge to do everything at once when I have a ‘good’ day, but it is still a struggle for me.