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Monday, 7 July 2014

A Miracle Day

Today I went to my local grocery stores (using my electric scooter as always). It doesn't sound a lot, but to me it was more like a miracle.

On Friday evening I went to the Scouts meeting as I usually manage every other week. On Saturday I spent 10 hours at a local event which Scouts was a part of. I don't even remember the last time I got up at 7 am. While there I mostly sat in the tent showing kids how to decorate biscuits. Though, to be honest, not many seemed that interested as there were bouncy castles right next to us.

If I had attempted such a long day a few months ago I would have been bedbound for at least a few days at the very least. And that's what I expected this time - I felt it would be well worth it to be a part of a Scout activity that wasn't just the regular meeting.  I am in a lot more pain and more exhausted than usual, but I am still functioning enough to make myself lunch without an issue and still managed to go out today.  I am planning on spending most of this week resting, but I have to admit I'm in a bit of shock at how little my weekend seems to have affected me (of course, I could be saying this prematurely as response symptoms don't always arrive straight away, though for me it is usually 2 days later which would be today).

I know I have been saying to people that I am slowly improving. It's something I am constantly telling myself as well, I think as I still can't fully believe it.  That's why it's so important to document when something like this happens, to show me as much as you that it's true and I really am improving.  Still a very long way to go before I can live any semblance of 'normal' life but I am stepping forward and that's enough for now.


Paige Slater said...

Very proud of you it must be hard work but I'm glad you came
Much love

Hayley- Eszti said...

Excellent news, long may these positive days and moments continue! Xxx