tag:blogger.com,1999:blog-2732202318489795253.post1665800721614412380..comments2022-12-13T05:09:56.088-08:00Comments on Tamara Epps: A Musing, A Ramble and Thoughts on M.E.Unknownnoreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2732202318489795253.post-34743245510036697532014-01-18T08:40:19.355-08:002014-01-18T08:40:19.355-08:00Leela, the problem with M.E, is there is no defini...Leela, the problem with M.E, is there is no definitive 'proof' that someone has it, maybe the author had an experience with someone who was really just lazy and saw M.E. as a 'get out of jail free' card. I really hope they see the truth now though. (Keep bugging them if not :P)<br /><br />Tamara, I'm really glad that you found a book that includes an M.E. sufferer. I know how it feels not to be included in fiction (and at least I can imagine that every man is actually a transman and it's just not important to the story)<br /><br />Lots of love<br />KazAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2732202318489795253.post-43982004927362745002014-01-16T22:52:06.908-08:002014-01-16T22:52:06.908-08:00Thanks so for the encouraging news Tamara. I have ...Thanks so for the encouraging news Tamara. I have always felt that the inclusion of accurate ME info as a sidebar may be one of most effective awareness raising tools. <br /><br />I'm so glad to see this today, as I just had the opposite experience and am quite upset. I read 'A Death to Record' by Rebecca Tope, and it is the opposite. It includes a minor character who is said to have ME, and is depicted as being a slacker, pretender, lazy, not really being sick...... and many more negative elements implied. <br /><br />I have written Rebecca Tope, the author, and hope she will make amends in some way - a comment in an interview that she wishes she hadn't written on ME before knowing what it is, a book with a new character accurately depicted.... I included references to the CCC, MEICC (with links) and Invest in ME, MERUK and Julia Newton for UK people to contact.<br /><br />I hope she will respond responsibly. She is an author I thought I would like to read, but is she is so wrong on ME, that alone stops it, and makes me question any other references in her writing. <br /><br />If she does not make right in some way, she and her publisher have lost me as a reader and purchaser, and I will also spread the news.<br /><br />I sure hope she will step up!<br /><br />leela<br /><br />leelaplaynoreply@blogger.com